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Resources About Heart Disease


Resources/Information About Heart Disease

St. Mary's Heart Resource Packet
Many people think heart failure means that the heart has stopped or is about to stop. That is not true. Heart failure means that the heart is not pumping blood through the body as well as it should.Your current symptoms may make you feel badly, and you may be scared by your diagnosis. In most cases heart failure cannot be cured. But there are things you can do to help your doctor keep your heart failure under control and to help you feel better. The information in the Heart Resource Packet will help you to know possible symptoms of heart failure, when to call the doctor and ways you can help control your heart failure.

For additional information about a specific heart disease or to locate a support group in your local area, contact any of the heart disease associations listed below or visit their related websites. Note: website addresses and contact persons are subject to change.

Adult Congenital Heart Association (ACHA)
ACHA is a national organization for adults and adolescents with congenital heart disease (CHD). The purpose of ACHA is to educate the public, adults with CHD, and the medical community about adult congenital heart issues through the development of forums, newsletters, support groups and other methods of public information. For more information, go to www.achaheart.org.

American Heart Association (AHA)
The American Heart Association is a nonprofit organization whose mission is to reduce disability and death from cardiovascular diseases and stroke. Volunteers and staff work to meet these goals through supporting research, providing resources, education and support to those with heart disease or those at risk, and act as national advocates. For more information:

  • www.americanheart.org
  • 1-800-AHA-USA1
  • American Heart Association National Center
    7272 Greenville Avenue
    Dallas, Texas 75231
  • Locally, (812) 424-4464
    233 S.E. Third St.
    Evansville, Indiana

American Heart Association Links for Information

  • Conditions - Knowing your family's health history can help you avoid both heart disease and stroke
  • Heart Hub - Patient portal for information, tools and resources about cardiovascular disease and stroke
  • Video Library - Videos discussing conditions, prevention and treatment, getting healthy and CPR and Emergency Care

American Stroke Association
Affiliated with the American Heart Association, this group provides information and support to over 1,850 stroke groups and more than 150,000 stroke survivors, caregivers and healthcare professionals throughout the country. For more information:

Hypertrophic Cardiomyopathy Association (HCMA)
The HCMA was established in 1996 as a support organization focused on providing information and support to those with HCM, their families and the medical community. For more information:

Mended Hearts
Mended Hearts, affiliated with the American Heart Association, is a support group for heart patients, families and caregivers. A network of people who have heart disease or families of patients are able to talk to patients and family members going through the same experience. Available in 260 cities across the U.S. and in Sudbury, Ontario, Canada, the motto of Mended Hearts is, "It's great to be alive - and to help others." For more information:

  • www.mendedhearts.org
  • or call the American Heart Association Information Line 1-800-AHAUSA1 and ask for Mended Hearts

Society of Interventional Radiology
Interventional Radiology is a rapidly growing area of medicine. Interventional Radiologists are physicians who specialize in minimally invasive, targeted treatments performed using imaging guidance. Interventional Radiology procedures are an advance in medicine that often replaces open surgical procedures. They are generally easier for the patient because they involve no large incisions, less risk, less pain and shorter recovery times. For more information, visit their website: Society of Interventional Radiology.

Life Line Screening

St. Mary’s Medical Center is partnering with Life Line Screening, the nation’s largest provider of preventive screenings, to help patients identify risk factors that lead to stroke before these potentially deadly events occur.

Screenings will be provided for the following conditions: Carotid Artery, Atrial Fibrillation, Abdominal Aortic Aneurysm, and Peripheral Arterial Disease. To pre-register for a screening, go to www.lifelinescreening.com or call 1-800-690-0295 to make an appointment.

Sudden Arrythmia Death Syndromes (SADS) Foundation
SADS is a nonprofit organization, established for the purpose of helping to prevent sudden and unexpected cardiac death in children and in young adults. The SADS Foundation is committed to supporting families and individuals with genetically mediated cardiac arrhythmias through education, research, and advocacy.

For more information:

  • 508 E. South Temple, Suite 20
    Salt Lake City, UT 84102
  • Call 1-800-786-7723
  • www.sads.org

TRIO - Transplant Recipient International Organization
TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors. For more information:

 

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